A somewhat personal thing...

Not personal for me directly, but very much indirectly. I have a very dear friend that has the genetic disease Cystic Fibrosis (CF). She'll be in a documentary that's coming out soon. The documentary is about another CF patient that's waiting for a double lung transplant.

I urge anyone here to watch that documentary and educate yourself about this. There's not many that even know that it exists. I'm not writing this to claim that there's nothing else in the world that is worse, I'm writing this because this is something that's personal... for me. For someone that has come to mean very much to me.

Her name is Kina. She really is a fighter as she's been through a lot and still remain an amazingly loving person, spreading joy and happiness where she goes.

Here's the trailer for the documentary.



If you want to know more about CF, or my friend's story and experiences going through the double lung transplant, you can go to Fighting To Breathe. I'm going to help her with getting the forums working, so... it's still under maintenance.

You can also look at my youtube channel "tinyphreak" where I have a playlist (directlink here) with little clip from Eva that explains it a bit better... and give a better image than I can possibly pain with words.

Though I can't tell it as well as she can, I'll say this for those that can't spend 15 minutes to watch an educational video or prefer to read.
With a double lung transplant, the fight is far from over for a patient with CF. It just makes it easier to breathe. Many of CF patients will suffer from other things, such as chronic backpains because of the constant coughing they've done and other illnesses due to the weak physical state they're in overall, and will take multiple medicines a day - and I'm not talking about the odd five (which are a lot to me personally to start with). Multiply that number with 5-6 and you'll be in the right ballpark. Worrying about germs, allergies... the body rejecting the lungs. Rejection is extremely fatal.

The money that a CF patient needs to spend on medicines are insane, as you can probably guess by the amount. This is not something they need to take, it's not simply to make life easier. It's to survive.


I'm not asking anyone here to do something, I'm just raising awareness. Just, consider donating your organs... a death can be so much more than just a tragedy.

I know that I'm going to go and put my name on a list of organ-donors, as soon as I find out if there's complications of transferring it when I move over-seas.

If you have any questions, feel free to ask. I'll direct any questions to Kina and possibly even Eva if you want any of their answers directly, or if you just want to send them your thoughts.
Guess that's all for now.

Be safe,
~Tony <3

This is serious and heavy stuff... Makes me start thinking..
Has this affected your friendship in some sort of way?

<3

Haha what a coincedence! I just got a mail trough the door today about becoming a donor and an answering form..

I just filled in the "Yes" option for all, without even showing it to my parents first

Siheld wrote:

This is serious and heavy stuff... Makes me start thinking..
Has this affected your friendship in some sort of way?

<3

No. She had CF when I got to know her, including the double lung transplant. I've been there through her ups and downs a lot though, and it's really hard for her to simply stay alive. With all the pills, and worrying elements. She keeps getting fevers, panic attacks... she faints a lot as she gets low on blood sugars, etc. etc.

And thanks guys, she sends her thanks for the thoughts. :]

I had a friend with CF in high school- when we all did a sponsored fast for some charity she did a chocolate eat.

Sadly she died when she was 15

Just watched this, I know about CF but never really gave it a lot of thought. I wish your friend best, it's good to just stop for a moment and think about this.

Thank you, I'll forward the well-wishes.

Im sorry to hear this mate.. I hope things will get better for all of them. Had myself experince such things.. As two of my girlfriends had cancer..(i know its not the same thing)

Doctors were not positive but they both managed to cheat death.. So there is always hope..Lastly a word that we say for victims of such terrible diseases

"Allah analarina babalarina yardimci olsun"

"may Allah aid their fathers and mothers"

This reminds me of a player on Alliance side: Jorja (Jorjan irl ).
She had cancer and my sister met her. We shared stories and she got me cry several times.
It was soo.. inspiring how she talked about her life, she didn't feared death and was dying with her head held high.
Then after 2 months she died... The mail I got from her in-game was so beautifull..
Really weird, how you don't know someone, but still feel sorry and cry for her..